So I'm new the whole blogging and posting and really letting people know exactly how I feel. Some people think they really know how I feel or felt since this whole thing happened. Ok wait ... Let me introduce myself incase you are just a passer by and randomly reading and let me explain what happened. My name is Stephanie. I'm a 26 year old female. And on August 26, 2010 my life changed forever. Really it started 3 years before that.
I was living in Mrytle Beach and starting getting these migraines that landing me in the ER 3 times within 24 hours. I had shots, pain meds, CT scan and a spinal tap. Conclusin I had some they called psuedo-tumor celebrae(false brain tumor). To explain pressure builds up on my brain and eyes apparently and gives the signals of a brain tumor, which isn't really there. So as you can imagine for 3 years I lived with migraines. I got accustomed to them, worked with them. Unless to sent me to bed I never let them put me out of comission.
For the whole month of August and maybe some of July I was in pain. Thought is was a tooth, had a tooth pulled. That didn't help. So then tried a chiropractor and for a day I felt better. The next day which was August 26 I was sitting in class and felt like death. I said through 3 classes and couldn't take it anymore. I went home and slept. Woke up to call out of work and I'm sure my GM thought I was lying. I drove myself to Mary Black Hospital which was close to my job, I don't know what I was thinking. I think in my mind I was thinking I'll go in here they will get it to stop hurting and then I'll go by work give my excuse.
Guess the joke was on me. They doped me up good and sent me home. I think I got home about 9:30 that night. I crawled in the bed and woke up not being able to see. I had to wake my dad by feeling my way to his room. All I remember is him asking if it can wait till morning and I said no we need to go now. After that it became a blur to me. Oh I forgot to mention they never ran any test on me or anything.
I got admitted and that's when the test began. They found 2 blood clots in the return veins. One of the clots had completely closed the vein up. The doctors were more concerned with how the clots got there than why I lost my vision. On August 28th, they told my parents I had a 20% chance of living. That they had to fly me to Charleston, which later I found out they could of killed me by doing that from the pressure changes in the air. In the end I was in the hospital between MB and MUSC for 3 weeks. I don't remember much. Waking up blind was scary but to be honest I was that scared at first. Reality didn't set in just yet. I thought eh these doctors with fix me and I'll be seeing in no time. Until the first day I was really alone one day in my room. First time ever alone since it happened and I had asked on of the residents what were the chances of my vision coming back and he was honest and said that's a million dollar question. What happened to you is so rare and it could be all, half or none.
During this I found out I have hereditary blood disorder that makes my blood clot faster than normal, the vein that the blood clot closed up is narrow. What happened to me only happens to 1 out of 1.2 million people. Not a way a girl wants to be told she one in a million let me tell you. As you can tell I've gotten some vision back, not all. Not enough to get my life back. Other things have happened this is just the beginning. I have lots of stories from the hospital stay, when I finally wasn't drugged up and to my first surgery to how great my friends and family was at first, to the friends I've lost and to what I've learned about by myself. Might even venture into my past about things. So if you are reading stick around. Maybe this can help you. It's always nice to know you are never alone or to know you're isn't so bad after all...It could always be worse. Trust me I know. <3
That was beautifully written! It is a very hard thing that you went through and I think there is strength to be found in sharing the journey. I'm glad you decided to start blogging. There are some really cool people in the blogging world. I can't wait to hear what all you have to say!
ReplyDeleteI will definitely be reading! I know your life has changed dramatically, but I'm just so glad you are still hear to be living that life. Love you always.
ReplyDelete*HERE!!!!
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