Being readmtted and first surgery!

Hello. Sorry I didn't post yesterday. Yesterday was a rough day for me. Let's seee where I left off I was just released from the hospital. Things seemed to get better from there. A little bit. I was starting to get where I could answer my phone without any help and was slowly able to see the screen to text and that was exciting. I was slowly able to be connected to the outside world from me room. Though I was having to be babysat. It was like I was xixty. Like I had come full circle. I'll never forget my first visit vack down in Charleston, the resident I had been seeing while I was in the hospital was the resident I seeing that day, He was so excited about that progress I was having. He was amazed. Now I guess I should explain. My nerves we severtly damaged. Especailly in my right eye. Theyhave never been able to understand why my right eye was more damaged but it happened that way. My cranial nerve was also messed up. They didn't know if it was severed or not. And it made my right eyelid close completely. I was still on steroids and it was helping with the swelling. So he was happy. So I continued to see the doctors it seemed like for every 2 weeks. I think the first week in October I had a bonfire at my house where my friends came and hung out. Then about November I noticed things were changing. That's when they were taking me off the steroids. My vision starting to changing. I remember breaking down and crying. I had a MRI done and they found out I had a narrow vein. Which could mean the pressure building up all those years before. So they schedule me a angio-gram. You may think I'm weird or strange, but that thing was so neat. I got to see the veins in my head. Haha. Yes I'm the weird one. I found it fascinating. They did it to see about putting a stint in the veins which is something new. Well they determined the stint wouldn't be worth it. And then that Neuro-surgeon was done with me .December 13, 2010 I broke down. I remember sitting on my couch at my house by myself and just cried. On December 15, 2010 I was being readmitted into MUSC. A week before my 26^th birthday. They were talking about surgery. Since the stint was out, the only other option was a shunt.

That week was really scary, aggravating and a lot of first for me. I had to get a lunbar punture which was not my first. I got to see Patrick. My favortie guy that works down there in the radiology room. But first they tried it on the floor and numbed my back good.... So by the time I got down to the room I didn't feel a thing. Patrick just laughed at me. It's bad when i'm not from Charleston and I've gotten to know these people. That night I felt it thought. They were giving my pain medicine all night. And it was so hard for me to get up out of bed. I had to get fresh frozen plasma also. Too make my blood thcker. I itched so bad. Daddy just laughed at me. I personally didn't find it funny. But I knew by the time I left that radiology room I was going into surgery. They were going to do the surgery the same day but I just had to eat. So surgery was scheduled for 10 the next morning. So naturally I couldn't eat after midnight. The nurses, bless their hearts, even came in and moved my gatorade and candy so I wouldn't be tempted. The next day rolled around and I had the worse nurse ever. He was so awful. Like I said my surgery was scheduled at 10. well apparently they had a lot of emergencies and he failed to tell us. At 11 when the tech who checks your vitals came, Beverly, she told me. Then that's when he came in. So at this point we didn't know when I was going into surgery. I waited all day, with nothing to eat except just the fluids they had me hooked up to. I was so mad. He told us by 5 we would know. I gave him till 6 to come in and tell me. It was going on 24 hours of no food and he was thnking I was fine because I had fluids. I finally demaded that I talk to a doctor not him. So once again surgery was rescheduled but they couldn't give us a time. I woke up at like 6 AM and was talking to the nurses. The nurses said they would see if the list was up yet, she hadn't taken 2 steps out of my room when she got the call to have me ready they would be there in 2 minutes to get me. I had to call my dad and tell him cause he was staying at a hotel. They took me to preop and next thing I know I'm being pushed back into my room and I wanted Subway. I just had my first surgery and it was brain surgery. I have a tiny hold on the side of my skull and a tube that runs from it to my stomach. It's so weird. Ok now that I've bored you to death with all of that nonsense. I was released the next day on the 20^th and two days later I celebrated my 26^th birthday with my closets friends at Fatz. I couldn't of asked for a better birthday either. I did exactly what I wanted. Granted it wasn't what normal 26 year olds do but I'm not living the normal life any more. And I probably never will. I know my life has changed tremedously and I've changed. I'm not the same person I was before. I am but I'm not. I'm a lot stronger but in the same sense I'm a lot vulnerable.. Ok I think I've said enough for the day. Until next time!